This is our Why – our oldest granddaughter Avery has Frederich’s Ataxia, a very rare disease. We regularly give to FARA, the Frederich’s Ataxia Research Alliance, who help promote medical studies and trials. No cure yet, but we’re praying.
Friedreich’s Ataxia (FA) is a genetic, progressive neuromuscular disease. People with FA experience issues with balance and coordination of movement that lead to life-altering loss of mobility. Avery no longer uses the walker pictured here, she already has to use a wheelchair.
Other symptoms can include fatigue, serious heart conditions, scoliosis, and diabetes. FA is life-shortening and affects an estimated 5,000 individuals in the United States and 15,000 worldwide.
